Wednesday, April 4, 2012
WEGO HAWMC Day #4 Write about health
Well technically I don't write about "MY" health. But I do write about my son's health... At first my blog started as just a way to vent about the everyday issues we face with Type 1 diabetes. But as I've grown into the role of a caregiver and mother of a child with diabetes over the last 2 years, so has my blog. It's now become an outlet to give others (D and Non D families) a little bit of a look into what it's like to raise a child with a chronic illness, or what it's like to be a child with a chronic illness. I've shared our experiences in hopes of reaching out and helping someone out there that may be reading. I have a hope that some newly diagnosed families may come across my blog and take a look through everything only to gain a better understanding of things and realize that they are not alone. In the beginning your thrown into this whole new world, and it's confusing, scary, and honestly you don't see it as serious as it really is. In the beginning we really only learned all the "Technical" parts of diabetes management. We were told test the first two weeks at 12 & 3am, to tweak his Lantus (basal).... Then you can only test 2 nights a week.
I have to be honest after those two weeks I was exhausted, little did I realize that would become my new "norm". And I did cut back and test only two nights a week. ( thinking about it now scares the crap outta me). But as we've grown and experienced more of the "realistic" side of diabetes management so has our managing skills. He gets tested at least 3 times a night now. Once before I go to bed ( gives me peace of mind knowing what he is) again at 12 or 12:30 depending on his # when I go to bed and what time. Then once more at 3 or 3:30am. From time to time he'll get tested at 5am. I have to say I am learning to break out of my "norm". Last night was an example... Clifford was 111 at 11pm. 111 could go either way but I decided since I was getting up at 12 to test he'd be okay. Somehow I even woke up 15 mins before my alarm and he was 143. This morning he woke up at 178... This leads me to question whether we need to change the basal at 3am. But that's a whole different story. I typically do not like a 111 at anytime before 3am. But I learned to go with it because there wasn't any nagging feeling of needing to treat it, I actually felt at peace with that number. Call it intuition, call it a 6th sense, or perhaps that's my "superpower" as discussed in yesterday's blog post. Whatever it is, it actually worked last night.
So the point to this all is, I write about his health for you all, and for myself. I write to help others in the same situation. I write to help those that may be a big ignorant as to what Type 1 diabetes is, and help to educate them properly. And I write for myself, writing helps me to release some tension, it helps me to think and analyze things when speaking about his numbers and basals etc. And you know what, I write for my son. When he gets older I'm hoping he'll stumble upon this and see how much I cared about him and his health, and more importantly that I love him.
Tuesday, April 3, 2012
WEGO HAWMC Day #3 Superpower Day
Superpower Day: If you had a superpower what would it be? How would you use it?
In reference to Type 1 diabetes my superpower would either be the ability to catch a low or high before they happen ( A human CGM if you will ), pretty much what a Diabetic Alert Dog can already do. Or the ability to regulate Clifford's pancreas as it worked before it decided to lose in the battle against his immune system. I'd imagine I would have a cape quite like this one:
Monday, April 2, 2012
WEGO: Health Activists Writer's Month Challenge Day 2
Sunday, April 1, 2012
WEGO Health Activist Writer’s Month Challenge – Day 1

Today is the first day of WEGO’s HAWMC. Every day during the month of April a different prompt will be used by health activists and bloggers across the world to raise awareness for a wide variety of health issues, including diabetes, lupus, Celiac’s disease, fibromyalgia, childhood arthritis, and so much more! I will be (attempting) to participate daily as an activist for Type 1 diabetes.
Today’s prompt asks us to “Pretend you’re making a time capsule of you & your health focus that won’t be opened until 2112. What’s in it? What would people think of it when they found it?”
This is a really interesting question when you think about it. I have faith and hope that in 2112 those who open our time capsule will have no idea what these items are used for because diabetes would have been cured a long time ago. So in my vision of this they will be confused and interested in what they've come across. Included in our time capsule will be information about what Type 1 diabetes is, it's causes and how those with T1 must take insulin daily in order to stay alive. We'll have pictures of children and adults affected by diabetes to show examples of how diabetes doesn't discriminate. Included will be a blood glucose meter, lancing device, lancets, insulin syringes, the beloved glucagon kit, bottles of insulin, and testing strips. We will include in there the daily routine of something that is living with type 1 diabetes including from wake up throughout the night of sleep.
My hope is that those who open this time capsule will see how much care and work is put into living a life with type 1, but how those affected don't let it get them down and they keep on fighting back and speaking out.
Friday, March 30, 2012
Diabetes is.....
A pain in the ass... There I've said it. I try very hard to be optimistic, and opened minded about everything diabetes throws our way. But every once in a while we have nights like tonight that just leave me wanting to take a break from Diabetes and give Clifford some well deserved vacation time from D!- Confusion
- Exhaustion
- Overwhelming
- Heartbreaking
- Scary
- Impossible
- A moocher
- Nagging
- Never ending
- Overbearing
- Emotional
- Gut wrenching
- Guilt
- Sadness
- Shame
- A smile
- A hug
- A kiss
- Compliments
- Friends
- Family
- Love
- Understanding
- Compassion
- Joy
- Strength
- And so much more
It's all about the basals....
The last few days have been nothing short of "interesting".... Tuesday evening Clifford has low after low, after low, starting at dinner with a 58 that he didn't feel. We couldn't get him up for anything, ended up having to suspend his pump until he finally got up to 98. At bedtime he was now a nice 105... But to me I expected some rebound highs from the lows that couldn't be brought up. And he got them 316 at 12, then 215 at 3am. At 5:15 I decided to test to see what was going on and he was 432?? Checked ketones 0.4 (okay well now that is not good since there are ketones)... Rechecked at 6:15 he was 319 still 0.4 ketones. Then he woke up at 6:30 saying he didn't feel good at all. We checked 419 0.8 ketones... (now that tells me something isn't right, tried to call his endo, but they told me that no one came in till 7am??? Whatever, after getting off that phone call not even 5-7 mins later he was 535 and 1.2 ketones.





