When it comes to caring for a child with a chronic illness there are so many things you could say. So many ways you could describe what your day to day is like, or what they have to deal with. But it is difficult to put all those very words together to form just the right words, the right phrases, and the right message. Two years ago I came across a poem on Facebook that was so powerful, and honest. It conveyed the right words, the right phrases and the right message. I wish I knew who the original author was so that I could thank them. I wanted to share it all with you because it is the raw, honest and powerful truth.