Monday, August 8, 2016

Back to School with Diabetes

It's almost that time of year again. The kiddos are getting ready to head back to school and start a new year. It's always a busy time with two kids Type 1 diabetes. There are supplies to be gathered, bags to be put together, documents to be prepared and meetings to schedule.

With so much on your plate as a parent of a child(ren) with Type 1 you may be overwhelmed with where to start. But I want to let you know you are not alone. In fact, the website I'm working for has put together a great article on everything you need to know to get ready for school this year.

If you are newly diagnosed this is a great starting point. Please check it out here at The Diabetes Council and let me know what you think. If we forgot anything, let me know.

Tuesday, July 19, 2016

CDE Interview with Janet Howard-Ducsay

I'm very much enjoying my new position with The Diabetes Council. In case you haven't had the chance to check it out, I recommend you take a look over there. It's a new site, and we're getting more information up frequently, but there is still a TON of great stuff.

I conducted my 2nd CDE interview recently with Janet Howard- Ducsay from Redlands Community Hospital. The CDE's I've known since my kids have been diagnosed have always been hard-working and patient dedicated. You can tell that each and every CDE I talk to always wants the best for their patients, and it shows here with Janice. Take a look over our interview and share with friends and family that may be interested in a Diabetes perspective from a CDE's point of view.

Growing Up with Diabetes

What's the saying they always say, "Kids grow up so fast"? Boy, is that true, but you know what? Kids with Diabetes grow up even faster! Like light speed faster. I mean it was only yesterday that my little girl was learning to walk and talk. After her diabetes diagnosis, she was ready to take on the world, always wanting to learn more, do more and manage more. And here's the kicker, she's only 5 years old.

So as I'm working earlier today, Hayleigh was helping me get lunch ready. I hear a clicking sound and look over and what do I see?

I ask "What are you doing Mags?" and she responds nonchalantly with, "Oh, nothing, just testing myself for lunch".... 

Wait a second, when did I blink and this tiny little lady become independent and wanting to test herself, at 5! 

SO yes folks, kids with Diabetes do grow up even faster! We joked last week when she asked about testing herself and she asked when her brother first tested himself, well, I told her "He was 7"... She grinned and was like "Okay then".... I guess this is what set this in motion, it's always a competition, however, little did she know he didn't get diagnosed until he was 6, so she had him beat there by 2 years, but that's something' we'll keep as our little secret, since she thinks she's winning.

Monday, July 18, 2016

New Position- CDE Interviews

Well, it's been a little while since I last posted, almost a year in fact. It's been a busy year for sure. I've recently accepted a new position that I'm loving. I'm in charge of reaching out and getting in touch with CDE's (Certified Diabetes Educators) across the country and asking them about their roles in the lives of those with Diabetes (All types). 

My first interview is up! I had the pleasure of talking with Janice Baker, B.Sc., M.B.A, R.D., CDE, CNSC, of Arch Health Partnersin California. Janice is a really sweet lady dedicated to making the lives of those living with Diabetes much more manageable and fulfilling. Take a read through our interview and share with your friends and family. If anyone is in the area where Janice and her partners work, I'd recommend checking them out. 

Wednesday, July 15, 2015

The Frustration of Getting Diabetes Supplies

You need to test your blood sugar daily, up to 15 times a day with Type 1 diabetes. In order to do this you need to have the test strips, and lancets to do so right? Unfortunately, for many with diabetes of all types it isn't as easy as it sounds. Instead, you spend over a month back and forth between a mail order diabetes supply company, and your insurance. I've battled before to get the supplies my son needed, but this time it was for my 4-year-old daughter, newly diagnosed in March. And this time it wasn't the insurance who was causing the holdup, instead is was the mail order company, who was not doing their job properly. I'd advise you if you are looking for a new D supplier, or are looking to sign up with one for the first time to stay away from EdgePark Medical.

For over a month I have talked to numerous representatives, many of who were quite rude with me and refused to listen to what I was saying. To say their customer service is horrible is an understatement. Our insurance said, they will cover 100% under the DME coverage for whatever her doctor prescribed. So I double checked with EdgePark, her doctor prescribed 27 boxes of (50 strips) and 14 boxes of (100) lancets for a 3-month period. Should be a piece of cake to get these sent right? WRONG!

Instead, they try to bill me for almost $800 for her first order, and insist that they can only send 6 boxes of strips (300 strips), and 3 boxes of lancets (300 lancets) for a 3 month period. That doesn't add up if you do the math at 15x testing a day right? After over a month and a half, our insurance calls and let's them know they are to submit documentation (prescription) with the claim when they put it through, otherwise without documentation from the doctor she is to test this many times a day,  guess what, it's going to get denied, which is what they did time after time after time, for over 1 month. No matter how much I told them they need to talk to the insurance, they stated no they didn't, in fact, they only needed to submit the claim and can't help if it's denied. But apparently, from the beginning if they were doing their job correctly, it would have gone through. No matter how much I told them that my 4-year-old was running dangerously low on her supplies, they could care less.

When I expressed to them I would have NO WAY of testing her blood sugar soon when we run out, short of pricking her finger and tasting her blood to see if it's sweet, they could care less. In my experience when it comes to EdgePark Medical Supplies, patient, and customer care is not of their upmost priority. Instead, they argue with the patient, or caregiver, insist they are doing everything they can to get their supplies to them when they are not, and get downright rude.

So now, I have a choice to make, to stick with a company that has treated us horribly, and lacked empathy to understand our situation, and the competence to realize it has been their fault all along. If they would have listened to me initially and contacted our insurance, this would have been fixed, well before she was dangerously low. Or I can change and go with one of the other 4 our insurance has suggested. The question is, what is EdgePark going to do to rectify the situation. Not once throughout the entire process have I heard an apology of any sorts, only from our insurance, who was not at fault. I guess for the brief time being, while I look around at the others, the ball is in EdgePark's court.

Tuesday, July 14, 2015

Learn the Symptoms to Prevent a Misdiagnosis

Type 1 diabetes can  be fatal if you do not understand the symptoms associated with the disease. Leaving it up to your doctor to diagnosis you child isn't always a fail proof method, because recently, there have been multiple cases of children misdiagnosed with the flu or another illness such as strep, that have fallen victim to the fatality of the disease. This should not happen, period! We should not be loosing happy, otherwise healthy children like Kycie Terry, or 4 year old David Michael Brown to this disease. A simple urine test, a quick finger stick could give you and your physician that vital information to save your child's life. 

During a sick visit, when a child exhibits ANY symptoms of Type 1 diabetes, this should be a mandatory test. During a child's well visit/ check up this should be a mandatory test! 40,000 people each year are being diagnosed with Type 1 diabetes in the United States, this includes children. The increase in the prevalence of Type 1 is increasing each and every year, yet we are failing to diagnose many precious children before it's too late, and that is unacceptable. Until it's mandatory for pediatricians to test your sick child for Type 1 or at their well visit/ check up, learn the symptoms and signs, educate your friends and family what to look for, you could very well save a child's life. While Type 1 can be fatal, it is extremely treatable. Kids with Type 1 can go on to live long, healthy lives with proper treatment, management and diligence. 

These symptoms are just the most common, recognizable ones, if your gut is telling you it's NOT the flu, or it's NOT strep throat, speak up, advocate for your child, and get them the proper testing and treatment they deserve!

Tuesday, June 30, 2015

Crossfit's Explosive Mistake! How About an Apology???

We've are raising our children to admit to their mistakes and own up to them. To take responsibility when they've done something wrong, apologize and make it better. It's really not rocket science at all. Unfortunately, CrossFit's CEO hasn't learned what it means to be an adult yet with their latest tweets.

Instead of 'man'ing' up and apologizing, admitting you were wrong, and now instead using your status in the online community to raise awareness for the difference between Type 1 and Type 2 diabetes, CrossFit has chosen instead to stand by their ignorance, and outdated information, and spreading more lies and misconceptions. Seriously, these people have 293,000 followers and they are continuing to misinform the masses.

How about instead @CrossFit you take a lesson from my kids, own up to your mistake, admit you were wrong, and move forward. Use your online presence to inform, educate and raise awareness. I know I'd definitely have more respect for you if you actually admitted your ignorance, and apologized. 

So I'm openly asking for an apology CrossFit, giving you the venue to admit you were not correct, and help correct it. Until then well, just like Type 1 diabetes, there is no cure for your stupidity either.