Tuesday, May 8, 2012

You think you know, but you have no idea…….


di.a.be.tes noun  : any of various abnormal conditions characterized by the secretion and excretion of excessive amounts of urine;

Sorry Webster’s dictionary but I’m going to change your definition of the big D up a bit

di.a.be.tes noun a monster that feasts on the bodies of unsuspecting victims, wreaking havoc throughout their lives, never permitting a full night’s sleep,always awake, always feasting, never takes a vacation, and so dangerous that the sound/word (DIE) is in it, and that is very well what it can do to you.

Today is True Life Tuesday for WEGO health. So let’s start this post with all the truthfulness of diabetes and what it brings

You think you know but you have no idea…… When it hits you or in our case, hits your child, you are not prepared. You are not prepared to watch your child laying in a hospital bed unconscious because high blood sugars are running rampant through his body. You are not prepared to hear the doctor’s explain to you that your son has “Type 1 diabetes”, and you are definitely not prepared to hear them explain it in a way like it’s no big deal. I’m here to say unfortunately it is a HUGE deal, and I wish they would have explained it that way to me in the beginning other than it’s no big deal! Oh yes and guess what no practice, here’s a needle stick it in his arm and give him this life saving medicine, and you have to now do this 6 times a day! I for one was not a fan of needles from the get go. I never could look at them when I was getting a shot. But now I have to do this to my son!!!!!

Fast forward, you are not prepared for a low blood sugar that causes him to pass out. Oh yes and you’re definitely not prepared to give a glucagon injection with your hands shaking trying to stay calm because there are two other kids watching on, trying to act like “it’s no big deal” while on the inside you are freaking thinking you are watching your son die before your eyes.  You definitely are not prepared to watch him have a seizure again because of “DIABETES” which remember is NO BIG DEAL! Thankfully these events are not something we experience on a daily basis, however the things we do experience on a daily basis are almost as scary.

*making sure to count and weight food/carbs diligently so that we don’t have one of the incidents above from too much insulin

*keeping him alive throughout the day. Doing this by giving again this “insulin” that could also at the same time kill him if given too much

*NIGHTS! Don’t even get me started on nights. I hate nights. I love sleep, and well those two just don’t’ go together anymore. It’s either a battle to keep blood sugars down, or a battle to keep them up. Or like one incident in the morning from blood in the cannula a battle to bring numbers down while getting rid of those deadly ketones!

I’m so tired of blood and everything else that comes with diabetes that my head hurts! I’m just tired of diabetes in general which you can read about here.

So here’s the true life according to this post. Diabetes sucks! Our life however is wonderful, I wouldn’t change a thing, well except maybe give Clifford a “WORKING” pancreas! Stupid pancreas and Damn Diabetes” For now I’m his working pancreas, until he’s given the duty of being his full time pancreas. Oh and case I forgot to mention it Diabetes You SUCK!


  1. I was 22 when I got sick (not diabetes). I am a counselor at a camp for kids with IBD and I remember talking to my parents about what it must be like to be a parent of a kid who was sick and how hard that must be. I joked that at least I wasn't a kid when I got sick. My parents both stone faced told me that it doesn't matter how old your kids are when they get sick...they are still your kids. Your babies. Most times I am thankful that I got sick and not them....because its easier to be the patient. I give all the credit in the world to the parents of sick kids, as it is much harder to watch someone you love be sick. Being the sick one is the easy part.

    1. Thank you for stopping by and for your reply Jackie. I would give anything to trade him places in a heartbeat. It's difficult as a parent to know that this will be your child's life forever. And I do agree with your parents that no matter the age it's still difficult. I know when he's out of our home and on his own with this I will worry. I will try not to but constantly will be worrying. So sorry for everything you are going through as well. Thank you very much for your comment.